When Côté-Arsenault came to UNCG seven years ago, she won National Institutes of Health funding to follow 30 parents after they discovered, mid-pregnancy, that their babies wouldn’t live. She and her physician colleague interviewed parents who chose not to terminate through the ensuing months to better understand their experiences, including interactions with doctors and nurses.
Their findings now help inform health providers and the United States’ 136 perinatal palliative care programs – a small but growing field providing care for these parents. “I think most people have the impression that parents try to get on with their lives as quickly as possible and not think about the baby, but the exact opposite can be true,” Côté-Arsenault says. “Many try to make the most of every day. They read to their babies in utero, they play music for them, and they are so thrilled to actually meet their baby at birth, even if their baby dies very quickly.”
Côté-Arsenault’s pioneering research has also helped health providers understand why, when caring for pregnant couples, they should recognize previous losses. “Women who’ve lost a child have specific pregnancy anxiety,” she found, in an earlier NIH study. This anxiety can lead to detrimental outcomes for both the mother and her current child.
“It’s not just the baby that parents are pregnant with right this minute that needs to be the focus,” Côté-Arsenault says. “We need to give much more holistic care.”
Next, Côté-Arsenault plans to travel to Scotland, to study approaches to perinatal loss in a different culture.
“People ask me why I do this research,” she says. “At least 25 percent of all conceptions end in a loss. It’s important to recognize that pregnancy doesn’t always end the way we hope, and these parents deserve the best care we can possibly give.”
